Barista training!

Here’s Alex! Don’t mess with him!

Looking for training opportunities for your son or daughter? Common Ground Cooperative, where Maddie works, is a Made by Mavericks barista training workshop. Created for persons with developmental disabilities, this five-day, 2 hours a day, program introduces small groups of students to the art of coffee preparation. At the end of the class, participants should be able to pull the perfect café style beverage. Participants must be 18 and over, able to stand for 2 hours and able to work in small groups.

Click here to apply! See a Maverick in action!

Not for you? See more options at My Community Hub, an online registration space for classes and programs offered by different developmental service agencies across Ontario.

 

 

House parent contract

The amazing Morgan has agreed to stay on for another year! We have all agreed to meet to review our house mentor contract and see if any changes are needed. The contract is an agreement between our mentor and the parents of the three residents. It sets our our overall goals for the house, the role of the mentor and outlines our responsibilities for providing compensation and support. As parents, we also have a contract with each other.

Our “Parent-partnership agreement” sets out our responsibilities and commitments to:

• find, hire and support the house mentor
• meet regularly to discuss how things are going in the house
• share expenses (hydro, gas, cable, internet) and administrative duties
• develop plans to accommodate House Mentor absences.

We have also outlined a process, as yet untested, to follow should any of the residents wish to move out.

At monthly (usually) meetings, we talk about house dynamics, house repair issues, and keep each other informed about the many activities of our daughters. Dropbox has proven to be a fairly effective “filing system” to keep a record of bills and meeting minutes. Every month we have a flurry of electronic bank transfers to pay common bills according to often complex formulas because different parents pay different bills.

Val owes Margaret 1/3 Hydro, plus 1/3 cable minus 1/3 of extra mentor hours. 

What does a house mentor do?

So much!  The role is a tricky one because our wonderful Morgan is both a housemate and a mentor. She is a housemate in simple ways – being cordial and friendly and interacting with the other residents on a day-to-day basis just as anyone in shared living arrangement would do. But within one short conversation, her housemate role shifts to a mentoring role and then back again.

Maddie with the house schedule!

As a mentor, Morgan is committed to spending 10-12 hours a week providing life-skills mentoring and coaching to the residents. During this time, she helps them plan and cook 3 communal meals a week. She plans and runs a weekly house meeting to discuss issues and shared chores and she keeps an eye on the house to ensure that systems are working smoothly. For example, she checks that chores are done, calendars are updated, laundry schedules are adhered to and communication among housemates is good. She provides guidance and instruction during health or safety issues or emergencies and checks-in (via text messaging) with the residents if they are out at night to be sure they return home safely.

We had initially hoped that 10-12 hours a week would encompass other individual support needs but we have instead decided to contract and pay for those separately. For example, Morgan is helping Maddie to develop a system of budgeting and money management. They have now set up regular meetings to work one-on-one on that.

The three families split the cost of Morgan’s rent and utilities, including internet. In addition, we share the cost of her groceries for the three communal meals. She also earns an hourly rate for any extra contracted mentoring, but sorting out the distinctions between housemate and house mentor is probably her biggest administrative challenge!

So what happened?

As I said, way back in June, we fired the first House Mentor. Then what to do? We asked Maddie how she felt staying in the house without someone there overnight. She was fine. So were Karen and Krystal. For the rest of the summer, we hired a wonderful young woman to come several times a week to have group meals with the Housemates. We realized that they are all quite independent and capable, but they are not very skilled at finding ways to get together. Having a support person meant that they spent time together, cooking, eating, cleaning up and just socializing.

Meanwhile, we thought long and hard about our job description and decided to amend it somewhat. For round two, we decided not to charge rent for the basement apartment. We also decided to ask the mentor to act as a Housemate and take part in the activities of the entire house, and not just live in the basement apartment and appear for meals.  Finally, in late August, we found the amazing Morgan!

The residents with Morgan and Madeleine (the awesome Landlady)

Morgan has two diplomas–one in Developmental Services and one in Comedy, Performance and Writing! Some of the housemates knew her from Dramaway where she has been teaching for several years. A performer, arts facilitator, and all-round creative person, she moved in with her two cats in September and things are going swimmingly. The cats proved to be a great addition too. That’s another story.

She’s ready but it’s hard!

Maddie has moved into a shared house with two friends! Her roommates, Karen and Krystal, had been living together for more than a year in a rented apartment with a “House Mentor”. When the lease came to an end, Krystal’s mom bought a house to provide more long-term stability for her daughter. The house was bigger and they invited Maddie to move in with them. Although we’ve been talking about independent living for several years, the invitation felt sudden to all of us.

We liked the model the two families had established, with the help of Lights Coordinator, Laura Starret. They had done the hard work of hashing out systems, budgets and  the responsibilities of the House Mentor. We had many meetings and email conversations with the other parents. Maddie visited the house several times and explored the neighbourhood. She had dinner with Krystal and Karen and talked about what it would be like to live with them.

For us, the House Mentor was key to making a decision but the wonderful young woman who had supported Krystal and Karen had decided not to renew her contract. On the advice of Laura Starret, we decided to take part in interviews for a new mentor as a way of making a more informed decision about the move.

The House Mentor position is a tricky role. Krystal’s mom, Madeleine Greey, has described it beautifully in an article for Canadian Living. Our job ad asked for someone to work approximately 10 hours a week to take part in two to three (no-cost) household meals, coach residents on household chores and errands, oversee safety, conduct household meetings and communicate regularly with the parents in exchange for significantly subsidized rent, unlimited internet, free utilities and laundry. We found someone. All the pieces of the puzzle fell in place and it was time to make a decision.

At a family meeting, we asked Maddie if she was ready to move in. She gave us her standard answer to hard questions, “I don’t know.” Her dad responded by writing, “Yes” and “No” and asked her to circle one. She took the pen. She took a deep breath. She wrote, “I’m ready, but it’s hard.”

She moved in two weeks later. Then we fired the House Mentor….

 

 

Housing–the next big step

It turns out that finding housing for a young adult child isn’t just one problem. It’s really two HUGE problems. At least that’s what Bryan Keshan, CEO of Reena, has helped me understand.

As a parent, I want to find housing that is suitable, safe and affordable–problem one. And we need housing that offers appropriate levels of support–the more thorny and more expensive problem.

Problem one: The house

Waiting lists for subsidized housing are decades long. Some of us have been talking about buying a house, condo or other building. But there are so many issues: affordability, co-ownership, maintenance, landlord/tenant issues….And as one wise parent said, “Why are you trying to set your child up for the rest of her life? She might want to move. More than once.” Renting is starting to look appealing.

Problem two: The services

Maddie is growing and learning all the time. It’s highly likely that she will be able to live quite independently one day, as several of her friends already do (like Alex!). But just to get started, she will need help. Trouble is, the services available are quite limited–to a few hours a week.

The idea: Pooling our Resources

So we came up with an idea: a group of families could rent shared accommodation and pool government-funded and family resources. If the group was willing, we could make the house accessible to young people with different financial means by balancing individual contributions between market rent and ODSP allocated amounts. Each family would commit to offer a regularly scheduled activity or service to the entire group (e.g. communal meal, shopping trip, recreational activity) according to their skills and talents. Because the group would rent a private sector residence, the landlord would be responsible for overall maintenance.

Using existing community services, the young people could develop the skills they need to live as supportive roommates and share the funded support hours they are each entitled to have from Passport or from agencies like Community Living or Lights. We would help our kids develop the daily living skills they need, using the excellent STEPS To Independence course developed by Community Living.

Now all we need is courage!

Province to close sheltered workshops

I couldn’t decide whether to weep with rage or despair over the Toronto Star’s recent series on sheltered workshops. This week, the headlines crowed that “the Star gets action” because Minister of Community and Social Services Helena Jaczek promised that she would close sheltered workshops permanently. This week, Ministry official Barbara Simmons said that change will unfold “one individual at a time,” as workshops are gradually replaced by agencies that find jobs, volunteer work and other activities in the community. “No one will be left without services, she promised.”

The Star cited examples of US jurisdictions like Vermont which closed workshops some time ago. The results? The Institute for Community Inclusion (UCEDD) found that in 2012, 25% of people with cognitive disabilities in Vermont were employed for an average of 16 hours per week. (Non-disabled people work 38 hours.)

What do those adults do the rest of the time (while their parents go to work)? They use “Medicaid waivers” to pay for services or they attend Adult Day programs – those “segregated” places the Star abhors. Once the last Vermont workshop closed, it took 3 years for 80% of the remaining clients to find mostly part-time work. Today, 35% of intellectually disabled people in Vermont live below the poverty line.

Closing doors doesn’t constitute action. A 2011 WHO report recommends that governments provide incentives and support for individuals with disabilities to seek employment and for employers to hire them. It argues for vocational guidance, training and employment services that are accessible to persons with disabilities—the same kinds of programs that the Star slammed last week.

Here’s an idea! Maybe the Ontario government could offer direct employment to this “fantastic population” in the provincially-funded civil service, school boards, and hospitals and health organizations. And since the Star “got action” maybe they will live up to their Atkinson Principles and “take action” to actively recruit and hire people with intellectual disabilities to join the Star Media empire.

Luckily for Maddie, the doors of Common Ground won’t close any time soon. Executive Director, Jennifer Hope, managed to get an “Employment” designation in the Ministry’s lists for their social enterprises. But Common Ground is exactly the kind of agency the Star targeted in its series.

Maddie’s workplace is “sheltered” by job coaches who teach skills and organize the catering business that partly sustains the program. Maddie earns a share of the profits—slave wages according the Star. But if she earned more, she would lose her Ontario Disability Support allowance—not in itself a living wage. It’s “segregated” (= Bad to the Star). To Maddie that means she works alongside peers who are true friends, not just co-workers who are polite to her. (Interesting that no one ever complains when gifted kids are segregated.)

Of course we hope that Maddie will one day find competitive employment. She is well-trained as a prep cook and has been actively looking for restaurant work with a job coach for four months. There are very few employers like the many Tim Horton’s franchise owners who are always cited as the better option by Ministry people and The Star.

When 80% of beds in psychiatric hospitals were closed in the 1950s and 1960s, it took nearly twenty years for the powers-that-be to realize that the resulting disaster could have been prevented if they had invested in community services first. Here we go again.